Since the rate of autism diagnosis has more than doubled between the year 2000 and now, many studies have pointed to the importance of early diagnosis and treatment. The idea is that, the earlier the symptoms can be detected, the better equipped family and professionals will be to provide the right treatments and therapies. Not only this, but also by helping their child sooner rather than later, they are giving their child the best chance at reaching their full potential. However, for many families, it can be challenging to receive all of the appropriate resources they need to help their child.
According to the Center for Disease Control, African American and Hispanic children do not get an autism diagnosis as promptly as their Caucasian peers. While many children tend to get diagnosed on the spectrum at the age of 4, research shows that African American children are diagnosed one year to two years later. Those two years may not seem like a huge issue, however those are years of critical brain development, where children learn many of their language skills and social skills. Research also shows that when minority children do get a referral, they are often misdiagnosed as having ADHD or other behavioral conduct problems.
This lends the question of whether autism may look different or manifest itself differently in African American or Hispanic children. So far, research has shown that regressive autism is twice as common in African American children as it is in Caucasian children. Regressive autism is when children lose social and language skills after they have developed them. Other studies hint that African American children are likely to exhibit challenging and aggressive behaviors, or that they have more severe problems with language and communication. The causes for these differences are not known, but it could still be traces back to the lack of resources and diagnosis of this specific population.
Recently Dr. Daniel Geschwind, autism scientist and researcher at UCLA, has joined with the Special Needs Network (SNN) to work on a large research project that will help identify genetic causes of autism in African American children. You can read about this project and how to get your child involved with his study here. In a topic full of uncertainty, one thing is certain, and that is the lack of scientific research to help us understand any differences in autism due to ethnicity or race. As more research is underway for underrepresented populations, we hope to be able to provide the right resources and service these children will need to thrive.
At Shema Kolainu, we serve children of all religions and backgrounds in the New York metro area and have a strong belief in giving every child their best chance.