We always talk about how to best get people on the autism spectrum the resources they need to thrive. Typically, that conversation centers around early intervention, therapies inside and outside of school, routines and advice for parents in the home, and advocating for a safe and healthy environment for these kids. But what happens when they become an adult? We put all this effort into having them reach their highest potential, but not everyone on the spectrum at 21 is developmentally at that age. So does all that effort go down the drain?
Christopher Merchant, now 19 years old, was diagnosed with autism and is developmentally on par with an elementary school student. He can read and do simple math problems and dedicates three hours daily at a car dealership where he has an aide to keep him on track. His mother, Lisa Merchant, has seen her son reach these milestones that she didn’t think were possible after his diagnosis, “it’s like learning a sport or playing an instrument: The more therapy he gets, the better he gets at it,” she explains.
When Christopher turns 21, he will no longer be eligible for therapies that address his speech and feeding challenges. His mom, expresses her concern, “Our biggest fear is he won’t end up with funding and he’ll end up sitting on the couch. My school district does a really food job–I’m just afraid all their good work will be for naught.”
In Pennsylvania, where the Merchants live, the number of people with autism has more than doubled, with adults being the majority of the growing population. In 2013 there were 8,395 adults on the spectrum in the state, and that number is projected to be over 30,000 by the year 2020. These numbers are reflected across the country with autism diagnoses being made for 1 in every 68 children. A report from their Bureau of Autism Services (BAS), created in 2007, found that even though they have started creating programs for adults on the spectrum, “as people transition to adulthood, the needs for supports and services often increase, although services become more difficult to access.”
This transitioning process and lack of funding/resources for people in the autism community is a serious issue; it is an issue for the parents who sometimes lose their job since their adult child still needs them, it’s an issue for the person on the spectrum, who after making so much progress up to this point now faces a brick wall, and it is an issue for the state, who has to find a way to incorporate people on the spectrum as productive members of society worth investing in. However, states like Pennsylvania are really taking these issues by the reigns. Other states should also being to recognize the need to address these challenges sooner rather than later.
Read the original article HERE
Read about ICare4Autism’s Workforce Initiatives HERE