May is Mental Health Month and Shannon Rosa shares her experience of being a parent with a 13-year-old autistic son with some very important points on gaining perspective from an autistic child’s point of view. Unlike many people Shannon found the updated statistic from the CDC, which states that 1 in 68 children are autistic, to be a comforting number. For her, it just serves as a confirmation that her son is neither “damaged or broken – he’s an example of human variation, like any kid.” And as CDC’s Dr. Colleen Boyle states, “It may be that we’re getting better at identifying autism,” which simply confirms research that the autism community has been gathering for years.
Shannon admits that her son’s differences used to upset her and it was a part of him that she found hard to accept. However, with more information and support she has come to understand her son’s differences as something to be accepted and getting him the best resources to accommodate his needs was an important part of this. Getting others to understand autistic children is an ongoing effort. For example, Shannon explains that many parents should not just give up hope after their child hits puberty since many autistic people develop skills throughout adolescence and adulthood. We should also be more aware of sensory overload and how they can lead to their child having a meltdown and so on. She leaves us with these points on how to view/interact with her son Leo and children like him on the spectrum, especially if you are not a parent of an autistic child or unfamiliar with autism:
- Leo isn’t waiting around for other kids to be friends with him. If he is spoken to with respect, then he may or may not interact with you.
- Just because he cannot communicate as well as you doesn’t mean he is less intelligent. If you talk about him as though he isn’t there he will remember and be unlikely to trust you.
- Getting both Leo’s attention and eye contact can be overwhelming for him. He makes eye contact on his own terms, but please don’t demand it.
- Sometimes it takes Leo a minute to process what you’ve said to him, so just give him a moment instead of trying to simplify your language or shout in his ear.
- Leo finds it calming to have sensory input such as sifting through pebbles, bouncing on a trampoline, or having a heavy blanket on his lap.
- If Leo is fidgeting, tapping or exhibiting any other repetitive behavior, if it is not an inconvenience for you then just let him be as it serves as a soothing activity for him.
- Leo is happy. Although autistic children experience frustration sometimes with communication or sensory overload they can be just as happy and joyous as any other child, something we tend to forget when messages about autism center around pity and prevention.
To read the original article, click here
For more resources on how to understand and care for autistic children, check out our International Autism Conference featuring:
Dr. Pamela Wolfberg, who will be presenting on Integrated Play Groups: Guiding Children with Autism in Social and Imaginary Worlds with Typical Peers.
Brian Iwata, who will be holding a workshop on Functional Analysis and Treatment of Severe Problem Behavior.
Marth Herbert, who will be presenting Taking a Fresh Look at Autism: Chronic Dynamic State–not Fixed Trait
To see these presentations/workshops and much more, CLICK HERE!