If I told you a 16 year old wrote a book that is being assigned in university classrooms, would you believe me? Maybe. What if I told you that 16 year old is a nonverbal autistic? Ido Kedar, a California teen with Autism Spectrum Disorder, has escaped the “solitary confinement”[i] of his body through mastering the motor skills necessary for communication tools like IPad apps. Ido is now able to express his feelings, opinions, and self-interest—insisting on inclusion in a regular education program and challenging experts’ assumptions about his condition. Ido describes the difficulty of his silent half-life saying, “It was terrible having experts talk to each other about me, and to hear them be wrong in their observations and interpretations, but to not be capable of telling them.” i
Ido advocates for integrated education through his blog and book, “Ido In Autismland,” and leads by example as an honor roll student. In his blog post Truth Over Theory, Ido describes his conversation with an open-minded professor as refreshing because, “more often, I think, people get used to their theories and stay there their whole professional careers.”[ii] Ido’s book has been assigned to college classrooms and is available on Amazon. In the personal statement of Ido’s Blog, he states his intent is to “help other autistic people find a way out of their silence too.”
Ido’s story was featured as an NBC News special, in which Ido was interviewed and able to respond via IPad, more articulately, in fact, than many people his age. The insight Ido has provided into the mind and condition of nonverbal autistics is monumental for the future of education and intervention strategies. Ido’s literary voice is unique and engaging—a true joy to read. Through his advocacy efforts and personal successes, Ido is altering the stigmas associated with autism. In an interview with NBC News Ido asserted, “I want people to understand that not speaking is not the same thing as not thinking.”i
At Shema Kolainu, we believe all children have a voice. With understanding and support, we can hear the voices of all of our children too— whether through mediating tools like tablets, their own vocalization, or caring attention to the nuances of their behavior. Share your stories of communication barriers and successes here!
[i] Lin, Daisy, and Bruce Hansel. “Autistic Teen Uses Tech to Break Silence: “I Escaped My Prison”” NBC Southern California. N.p., 35 Apr. 2013. Web. 06 May 2013. <http://www.nbclosangeles.com/news/local/Autistic-Teen-Writes-Book-on-an-iPad–204775591.html>.
[ii] Kedar, Ido. “Truth Over Theory.” Ido In Autismland. N.p., 13 Feb. 2013. Web. 06 May 2013. <http://idoinautismland.blogspot.com/>.